Matthew Forbes Romer Foundation Raises $90,000 At Gala

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Staff report

During the Mathew Forbes Romer Foundation’s annual “Sweetness & Laughter” gala, the nonprofit dedicated to the education and research of children’s genetic diseases of the brain, raised more than $90,000.

The event marked its 21st year with a celebration of Gene Therapy theme. To go with the gene theme, guests wore jeans and were entertained by performer Gene Merola.

Two leaders were honored during the event: Jeffery Castelli and Terence Flotte.

Jeffrey Castelli, Ph.D., Chief Portfolio Officer and Head of Gene Therapy for Amicus Therapeutics. Castelli was honored for his Company’s long-term commitment to people living with rare diseases, as well as its recent acquisition of an extensive gene therapy portfolio of 10 clinical and preclinical AAV Programs in neurologic lysosomal storage disorders, including interests in Tay-Sachs.

Terence Flotte, MD, Dean of University of Massachusetts School of Medicine & Former Director of the University of Florida’s Powell Gene Therapy Center. Dr. Flotte was honored for his pioneering work in Gene Therapy and his critical role as the principal investigator leading the team into clinical trials for Tay-Sachs gene therapy and related diseases.

The Mathew Forbes Romer Foundation also hosted a “Celebration of Gene Therapy” Roundtable session at Florida Atlantic University College of Medicine in Boca Raton the day after the gala.